Kid Captain Lily Sebastian was born with giant omphalocele, a rare birth defect in which her abdominal organs were outside her body, encased in a sac-like membrane. She had her first surgery — of many — the day after she was born and spent nearly 10 months in the University of Iowa Health Care Stead Family Children's Hospital neonatal ICU. “Lily was a very sick NICU baby,” says Lily’s mom, Amber, of Cedar Rapids. “She almost gave up a few times, but the team did not let her. The doctors kept Lil
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University of Iowa Health Care Stead Family Children's Hospital on Instagram: "Kid Captain Lily Sebastian was born with giant omphalocele, a rare birth defect in which her abdominal organs were outside her body, encased in a sac-like membrane. She had her first surgery — of many — the day after she was born and spent nearly 10 months in our neonatal ICU. “Lily was a very sick NICU baby,” says Lily’s mom, Amber, of Cedar Rapids. “She almost gave up a few times, but the team did not let her. The d
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