Kreed and I were all set to have this awesome discussion about autism and autism awareness BUT here is the first OUTTAKE from our first attempt. I hope you find it as funny as I did LOL. | Kreed's World: A Complex Journey Through Autism
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Kreed and I were all set to have this awesome discussion about autism and autism awareness BUT here is the first OUTTAKE from our first attempt. I hope you find it as funny as I did LOL. | Kreed's World: A Complex Journey Through Autism
4.1K viewsApr 2, 2015
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This. THIS! This is autism for some families. For Kreed, he experienced medical issues and this was how he dealt with it. We begged doctors to listen. They didn’t and now he’s dead. I filmed these episodes so I would be believed. I. Had. To. Film. Rages. Just. To. Be. Believed. That is fucked up. Families are gas lighted and told are crazy or it’s just autism. I’m still so angry. And this IS Autism Awareness. This IS the reality. Hear us. | Kreed's World: A Complex Journey Through Autism
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This. THIS! This is autism for some families. For Kreed, he experienced medical issues and this was how he dealt with it. We begged doctors to listen. They didn’t and now he’s dead. I filmed these episodes so I would be believed. I. Had. To. Film. Rages. Just. To. Be. Believed. That is fucked up. Families are gas lighted and told are crazy or it’s just autism. I’m still so angry. And this IS Autism Awareness. This IS the reality. Hear us. | Kreed's World: A Complex Journey Through Autism
13.4K viewsApr 6, 2024
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https://www.youcaring.com/kreed-s-family-569866 A friend of ours, Kar, made an incredible tribute video for our son Kreed. We are humbled by the amount of outreach that has come our way and positive thoughts and people donating to help us send Kreed home for his final resting place and funeral. We are touched beyond touched. This video truly captures our love for Kreed as his parents and the true joy Kreed lived every day. I'll say it again, the best way to honor Kreed is to live each life with
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https://www.youcaring.com/kreed-s-family-569866 A friend of ours, Kar, made an incredible tribute video for our son Kreed. We are humbled by the amount of outreach that has come our way and positive thoughts and people donating to help us send Kreed home for his final resting place and funeral. We are touched beyond touched. This video truly captures our love for Kreed as his parents and the true joy Kreed lived every day. I'll say it again, the best way to honor Kreed is to live each life with
59.8K viewsMay 14, 2016
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Who was Kreed before his medical conditions took over and no one heard him? This guy! This amazing, smart, social, happy, joyful guy! Just one year before his death. My name is Kreed. | Kreed's World: A Complex Journey Through Autism
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Who was Kreed before his medical conditions took over and no one heard him? This guy! This amazing, smart, social, happy, joyful guy! Just one year before his death. My name is Kreed. | Kreed's World: A Complex Journey Through Autism
8.4K viewsApr 8, 2024
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I will never not share this video. It’s World Autism Awareness Day and Kreed was very aware of the disorder that robbed him of language. Kreed had severe autism, he bashed his head in. He would bite his fingers. He tried to bite his toes off. He would punch me. Bite me. But. This was just a part of Kreed. He also loved life! The smell of flowers, the feel of water, kayaking, tubing, scooter rides, watching his favorite shows, cooking, eating French fries…so much. And. Autism robbed him of his ab
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I will never not share this video. It’s World Autism Awareness Day and Kreed was very aware of the disorder that robbed him of language. Kreed had severe autism, he bashed his head in. He would bite his fingers. He tried to bite his toes off. He would punch me. Bite me. But. This was just a part of Kreed. He also loved life! The smell of flowers, the feel of water, kayaking, tubing, scooter rides, watching his favorite shows, cooking, eating French fries…so much. And. Autism robbed him of his ab
13.3K viewsApr 2, 2024
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In 2011, we got to work on having Kreed experiencing everything...inlcuding rollerblading!!! Severe autism never stopped him from at least trying and discovering that he had no limits, except those which society placed on him! | Kreed's World: A Complex Journey Through Autism
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In 2011, we got to work on having Kreed experiencing everything...inlcuding rollerblading!!! Severe autism never stopped him from at least trying and discovering that he had no limits, except those which society placed on him! | Kreed's World: A Complex Journey Through Autism
4.5K viewsMay 25, 2020
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Looking through old videos. Kreed is 13 here seeing a fort for the first time made by his brother. | Kreed's World: A Complex Journey Through Autism
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Looking through old videos. Kreed is 13 here seeing a fort for the first time made by his brother. | Kreed's World: A Complex Journey Through Autism
5.1K viewsOct 22, 2017
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Kreed tends to obsess even when I tell him he is going somewhere. So we added a quick new button where he can answer the question himself. It's helped a ton! | Kreed's World: A Complex Journey Through Autism
5.2K viewsJan 14, 2015
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Kreed noticed the Christmas tree for the first time last night! | Kreed's World: A Complex Journey Through Autism
31 viewsDec 7, 2015
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Kreed has been waking up in rages and what appeared to be pain. So we talked to him about it. This is why AAC devices are so important. | Kreed's World: A Complex Journey Through Autism
77 viewsNov 16, 2015
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Kreed is still in pain and still has respiratory issues- in fact he may be in respiratory acidosis AGAIN. This morning we talked and decided that if Kreed was going to rage in pain or continue to have respiratory issues, we would at least have as much fun and joy as possible whenever he can. During the active part of this video, Kreed's respiratory alarm is going off the whole time ha, but he enjoyed himself so much and it was the highlight of his day. So really and truly, we strive to give him
15.7K viewsApr 30, 2016
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Kreed had some issues all morning and so finally I told him he was grounded and what would happen. He stopped immediately as we went over his behavior. Here is part of our conversation. He is gaining a huge awareness of his own behavior recently! | Kreed's World: A Complex Journey Through Autism
4.6K viewsNov 16, 2014
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Kreed and I's funny night time conversation before bed using his new Dynavox App. First time he really sought it out to tell me some things. His giggle during it was hysterical. There is a part where he is sad but other than that, it was a pretty best night with him going back and forth with talking on his AAC. | Kreed's World: A Complex Journey Through Autism
88 viewsOct 18, 2013
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As we have talked before, Kreed takes medical marijuana/cannabis and it's been an amazing journey for us. Without it, Kreed would suffer through so many more rages and meltdowns and would probably injure himself more. We are open about our journey in hopes more states will legalize medical marijuana and autism will be a qualifying condition. Especially for those with severe self injury and aggression- there can be so much more hope. Cannabis heals. | Kreed's World: A Complex Journey Through Auti
22.6K viewsApr 26, 2016
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New self help video! Teaching Kreed bathroom routine- this time we show the motor planning involved in teaching him new self help skills. It generally takes Kreed a couple weeks to months to get the motor planning done with self help. It's not about if he can or can't do it...it's simply about taking the time to teach him. We don't have a time table. We take it one day at a time and provide him with the support he needs. As a result of this approach, we don't feel pressure or get upset if he can
4.8K viewsDec 10, 2014
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A video of Kreed learning language while waiting. This video was significant because waiting often caused severe problem behavior. Kreed didn't know what to say while waiting, or for how long or he wasn't even sure what he was waiting for. He would either engage in behaviors to let me know how unhappy he was or would ask the same question over and over. Instead, I added some language to his device that made sense for how it seemed he felt and invited him to talk about it with me. Made all the di
15.3K viewsFeb 3, 2022
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Kreed has a new friend Skyler that I've written about below. In all the years Kreed has been communicating he's only ever asked for caregivers or people in his family. Never another child. A friend. Now he has- see this video and let me know if your eyes stay dry. I didn't even realize Kreed understood "best friends" concept to this degree- because he has rarely even ever had a friend. | Kreed's World: A Complex Journey Through Autism
4.1K viewsMar 24, 2015
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Kreed has a little something to say to everyone who shared, donated and supported his fundraiser to get him his continuous glucose monitor and supplies and specialized bed for him!! We have reached our goal and could not be more thrilled that so many have come together to help him! Give a little, change a lot. Thank you from the bottom of our hearts, especially to the Ride to Give army! They are amazing!! | Kreed's World: A Complex Journey Through Autism
10.6K viewsApr 27, 2015
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Kreed had a meltdown un-related to his blood sugar. When it was over we always talk about what happened. I always want him to know why he has to wear helmets or gloves etc. It's important for this discussion to happen, as we discussed on Wednesdays webinar. After this discussion we moved on and talked about nightime and food. I love hearing his thoughts and knowing he understands and can show me he understands. And can have his voice heard. It's been an amazing journey. | Kreed's World: A Comple
5.8K viewsApr 3, 2015
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Kreed back in the day with his first device!! We were about a couple months into using the device and it all started with his favorite things. Videos or things to do! This weekend in particular we were using the device to request all the things. This is also when I began to be in his life full time. I miss him so much. This video also reminds me of our time with each other and how much the device was always apart of our life together. My heart aches for him. | Kreed's World: A Complex Journey Th
5.9K viewsJan 21, 2024
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Video depicting Kreed talking about his pain and wanting to see the doctor. And asking "what are the steps we need to take?" To go to the doctor lol! Never under estimate your child and their ability to learn language. Not just requesting. Not just one word answers. But conversation. Describing pain and sickness. Our kids are capable of so much! And communication devices give our kids so much more language if we believe they can and will learn to communicate! Before a device he would have been s
7.6K viewsSep 17, 2017
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Video of Kreed at Larkburger. He's been having some rough days but again, we keep him going. He starts out well here but works himself up. The camera goes black- I did not know it was still recording. He began to hit himself in the head so I had to think fast- he's too big to just haul out of his seat like we used to do. If he didn't have his device at this stage of the game I don't know what we would do. He was able to talk himself out of being so angry. Because he could communicate he didn't h
306 viewsNov 3, 2015
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This moment. Captured. Kreed yelling. Handcuffed. Helmet on his head. This moment. I didn’t know how to help him. I’m trying to figure out how to figure it out while he raged. I needed to check his oxygen, I knew, at the very least. I could only do that with him restrained. He was low and dropping. This moment. I only had seconds to minutes to figure out what was wrong with a man child punching and kicking and biting so hard he tore the flesh from his toes and hands and bashing his head in. I ch
8.2K viewsJul 2, 2024
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One of the first video’s of Kreed with his device back in 2010. AAC still in its infancy and everything had to be programmed. Kreed loved some videos my little brother had made at the time so I used that motivation for him to learn to request. So many mistakes though- already incorporating yes/no, making demanding statements for him to talk to me. Demanding him to tell me how he feels. Physical prompting. Back then, I didn’t have any roadmap. His therapists at the time told me he couldn’t learn
2.6K viewsJun 30, 2022
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Erin Marie shares the story of Kreed, his life, and his legacy... Captured at Upstate Cerebral Palsy's conference this summer. Follow Kreed's World: A Complex Journey Through Autism and than you for sharing so much... #pfasbt #psychology #bcba #rbt | The Daily BA
2.5K viewsDec 1, 2022
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Throw back to one of the discussions I had with Kreed about his helmet. I wish I had asked him differently and been a little different but we just got through an extreme SIB episode and I was scared for him and for myself. I did discuss restraints with Kreed and even hand cuffs. We always debriefed and talking about it. I admire Kreed’s ability to have these conversations with me. And to know he understood why we needed protective equipment. It hurt my heart so much when he would multilateral hi
10.7K views5 months ago
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Using an AAC device opened up Kreed to so much. I never knew where we would get with his language. Talking about autism with him was amazing. And hearing more about his love for chips 😂 Or his creative ways to ask for things. I envisioned so much for him. We did accomplish a lot, just ended way too soon. I’m so glad we made the decision to work so hard with Kreed and his device. In Kreed’s early years so many wrote him off and said he could never learn and his behaviors were too severe. This vi
8.6K viewsMay 17, 2020
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This was probably the number one most liked video ever. Three years ago. Kreed rocking it out while his body was in failure. But as long as he was happy and feeling joy, nothing else mattered! If you’re going to die, I hope everyone gets the chance to go out like Kreed. He never stopped his passion for life one time until there was nothing left he had to give. And thank you to Ty for giving so much of himself to Kreed while he was in the hospital. | Kreed's World: A Complex Journey Through Autis
11.7K viewsMay 5, 2019
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Here we finally got rid of the yes/no that was not helpful in teaching Kreed to use the device and I put his favorite things as I knew them and bam, he starts requesting! This was absolutely the beginning. We had to feel our way through so much of this because there was just no information out there that was accessible. I’m grateful Kreed was game to figure it out with me! | Kreed's World: A Complex Journey Through Autism
5.2K viewsJan 25, 2024
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Teenager with autism: arguing using AAC device
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