The Walk to Defeat ALS is the ALS Association’s signature event, with funds raised directly supporting innovative research, care services, and advocacy efforts.

The ALS Association led the advocacy effort behind The Chris Larkin Act, working alongside legislative champion Rep. Ryan Guillen and advocates across the state to push for this life-changing ...

These groups are composed of individuals directly affected by ALS and are deeply invested in improving patients’ lives. Their advocacy efforts aim to accelerate the approval of promising treatments.

The fundraising efforts also support the care services, advocacy and research. “We want people with ALS to kind of live life on their own terms,” Duque said.

In the last year, the FDA has approved two new drugs for ALS, after a nearly 20-year drought of new options. The approvals followed intense lobbying by advocacy groups ...

Thompson threw herself into I AM ALS advocacy following her husband’s diagnosis in December 2018, rising to become co-chair of legislative affairs as the group pushed – and succeeded – in ...

On Sunday, October 5, the San Diego community will come together for the 24th Annual Walk to Defeat ALS, a fundraising event ...

ALS Advocacy, Midsouth Student Filmmaking, and Protecting … Live at 9 / Oct 30, 2024 / 09:41 PM CDT ...

WASHINGTON (WTVD) -- Tuesday was ALS Advocacy Day and around 1,000 people went to Capitol Hill to fight for their cause-- among those attending was former ABC11 anchor Larry Stogner. Like ...

Conventional wisdom said around 10% of ALS cases were passed down, traced to one of a small smattering of genes, some mutations almost guaranteed to give you ALS, others a roll of loaded dice.